Postdoc
Lærke Kjær Tolstrup
Department of Oncology, Odense University Hospiatl
| Projekt styring | ||
| Projekt status | Open | |
| Data indsamlingsdatoer | ||
| Start | 03.01.2022 | |
| Slut | - | |
Clinical database on patients with complex late effects after cancer, including patient-reported outcomes
Short summary
The Region of Southern Denmark has in 2022 established four late effects clinics to help cancer survivors suffering from complex and severe late effects. This database captures the patient perspective by using patient-reported outcomes. Moreover, we collect information on age, gender, and demographic data such as education, employment, and number of children. In addition, we collect disease characteristics i.e., diagnoses, cancer treatment, type, and number of late effects.
Rationale
In accordance with the unmet needs of cancers survivors, the Region of Southern Denmark decided in April 2021 to establish a "Single entrance for patients with complex late effects after cancer and cancer treatment". This initiative resulted in the development of four regional late effects clinics with the shared goal of helping cancer survivors suffering from late effects of cancer trajectory and treatment. The regional clinics are placed within the existing departments of oncology at four regional hospitals, aiming to ensure equal access for all patients. As described, late effects are poorly identified and addressed within the current models of care . Moreover, there is a lack of knowledge about the exact extent of late effects after cancer treatment as well as their impact on patients' QoL. The newly established LECs provide a novel opportunity to examine both the number and severity/complexity of unmet needs concerning the late effects experienced by a subset of cancer survivors within a real-life clinical setting. This study aimed to capture and analyze the full range of physical, mental, and psychosocial issues among Danish cancer survivors referred to a Danish LEC using patient-reported outcomes. Furthermore, we describe demographic data and the type and severity of the late effects experienced by these patients.
Description of the cohort
Cancer patients referred to the four late effects clinics after cancer in the Region of Southern Denmark. Both patients with oncological (all diagnoses) and hematological cancers can be referred to the clinics by their general practitioner or healthcare professionals at the hospitals.
Data and biological material
None
Collaborating researchers and departments
Department of Oncology, Vejle/Esbjerg Hospital
- Lise Ventzel
- Cathrine Lundgaard Riis
- Department of Oncology,
- Carina Ørts Christensen, Sygehus Sønderjylland
Publications associated with the project