Head of REHPA, Consultant
Ane Bonnerup Vind
REHPA, The Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital
| Projekt styring | ||
| Projekt status | Active | |
| Data indsamlingsdatoer | ||
| Start | 01.10.2015 | |
| Slut | 01.10.2035 | |
REHPA - The Research Database for Rehabilitation and Palliative Care for people with life- threatening diseases in Denmark
Short summary
The purpose of the REHPA research database is to collect knowledge about physical, psychological, social, and spiritual/existential rehabilitation needs among people with life-threatening illnesses, to clarify the role of rehabilitation interventions, support rehabilitation efforts, and identify the development of rehabilitation needs over time. Data are collected in connection with the protocolled rehabilitation programs offered at the institution.
Rationale
The Danish Knowledge Centre for Rehabilitation and Palliative Care, REHPA, works to collect, generate, and share knowledge about rehabilitation and palliative care for the benefit of people with life-threatening illnesses and their relatives. One of REHPA's activities is to offer residential rehabilitation courses for people with life-threatening illnesses. These courses take place at the research clinic in Nyborg and are open to people from across the country. The clinic functions as a 'clinical experimental setting,' where various research projects are developed and carried out. The specific target group are varying depending on the focus of the current research project. The research database contains systematically collected data from participants enrolled in the courses. Data are collected to strengthen the evidence base on the physical, psychological, social, and spiritual/existential rehabilitation needs that the patients experience during or after treatment. The database also aims to make data available for future projects aligned with the overall purpose of the REHPA database. Such subprojects must obtain all necessary approvals separately, and any data transfer will comply with current legislation. For more information please see www.rehpa.dk or contact REHPA by mail: Rehpa@rsyd.dk
Description of the cohort
Participants at REHPA rehabilitation courses vary, as the courses have different purposes; they may be disease-specific or more generic, and some have a special focus, e.g., fatigue. Courses may also involve relatives in parts of the program. The overall inclusion criteria are individuals over 18 years of age who speak and understand Danish, are independent in personal care, and capable of managing their own medication. In addition, there may be specific inclusion criteria linked to the research focus of each individual project.
Data and biological material
The following types of data are collected: identification and contact information; demographic data (e.g. employment status, education and civil status); and health-related data (diagnosis, disease status, comorbidities, treatment). Furthermore, patient-reported outcomes are collected through questionnaires covering health, function, quality of life, and psychosocial factors. In addition, data from qualitative interviews may be obtained.
Collaborating researchers and departments
REHPA's partners and collaborators are listed on the website, please see http://www.rehpa.dk/