Lærke Kjær Tolstrup
Lærke Kjær Tolstrup
Department of Oncology, Odense University Hospiatl
| Project management | ||
| Project status | Open | |
| Data collection dates | ||
| Start | 01.05.2024 | |
| End | 30.06.2023 | |
Exploring family health, Support, Self-efficacy and Quality of Life during the cancer trajectory: A protocol for a longitudinal mixed methods multi-center cohort study
Short summary
Introduction A cancer diagnosis not only profoundly impacts individuals but also the very core of their families, reshaping their lives in many ways. However, there is a lack of focus on the well-being and health of the entire family across adult cancer research. This is concerning given that one-third of the Danish population will get a cancer diagnosis before the age of 75, suggesting that many Danes will become caregivers during their lifetime. In addition, identifying vulnerable families is
Rationale
The principal aim of this study is to investigate family health, needs and perceived support, quality of life, self-efficacy, depression, stress and resilience in both patients with cancer and their families across the cancer trajectory. Additionally, the study seeks to identify particularly burdened and vulnerable families and investigate contributing factors to their vulnerability.
Description of the cohort
In total, we plan to include 240 patients equally divided between four of the most frequent cancer populations: breast, prostate, gastrointestinal, and lymphoma (60 patients in each group). In addition, appointed family caregivers will be included. As each recruited patient can appoint one or two caregivers or choose not to recruit any, the number of caregivers is unknown. Patients and their caregivers will be recruited from six different Danish hospital departments across four hospitals: Odense University Hospital, Lillebaelt Hospital, Copenhagen University Hospital (Rigshospitalet), and Zealand University Hospital. The six sites include three oncology departments and three hematology departments, primarily outpatient clinics, Inclusion criteria - patients and caregivers Cancer diagnoses: breast, prostate, colorectal cancer or lymphoma, curative intended treatment, ≥18 years, Danish speaking. Family caregivers over the age of 18 and appointed by the patients. Exclusion criteria - patients and caregivers Not able to understand or give written informed consent, not able to speak Danish or complete questionnaires in Danish. No access to electronic mailbox (eboks).
Data and biological material
Not applicable
Collaborating researchers and departments
University of Southern Denmark Professor Karin Dieperink, Department of Hematology Odense University Hospital Anne Møller Clausen, Open Patient data Explorative Network, Odense University Hospital Sören Möller, Department. of Hematology, Zealand University Hospital Mette Kjerholt, Department of Hematology, Centre for Cancer and Organ Diseases, Copenhagen University Hospital Mary Jarden, Department of Oncology, Centre for Cancer and Organ Diseases Karin Piil, Research unit Children and Adolescent Psychiatry, Department of Clinical Research, University of Southern Denmark Trine Munk-Olsen, Department of Oncology, Vejle Hospital postdoc Mette Stie, Department of Hematology PhD stf Southern Denmark ,