stud.cand.scient.san.publ.
Katrine Wind Nielsen
OPEN Research Unit, Faculty of Health Science, University of Southern Denmark
| Project management | ||
| Project status | Open | |
| Data collection dates | ||
| Start | 01.02.2025 | |
| End | 30.06.2025 | |
Experiences with Citizen Involvement in Project Lung Cancer Screening in Southern Denmark (PLUS) - A Qualitative Study
Short summary
This thesis investigates how power emerges and is maintained between researchers/health professionals and citizen representatives in citizen involvement processes in health research. Using "Project Lung Cancer Screening in Southern Denmark (PLUS)" as a case, it analyzes collaboration dynamics through qualitative interviews and an observation of an evaluation process. The study highlights how power structures influence citizen involvement.
Rationale
Citizen involvement in health research is considered to enhance the relevance and quality of research. However, previous studies indicate that power relations can act as a barrier to genuine involvement. Power can manifest in various forms, such as control over knowledge, decision-making processes, and access to resources, potentially creating imbalances in the collaboration between researchers/health professionals and citizen representatives. This thesis explores how power plays out in a concrete research context by analyzing the collaboration in the PLUS project. By conducting interviews with both researchers/health professionals and citizen representatives and performing an observation, the study seeks to identify patterns in power relations and their implications for citizen involvement.
Description of the cohort
The informants in this thesis consist of two main groups: the research group (researchers and health professionals) and citizen representatives affiliated with the PLUS project. The research group includes researchers and health professionals involved in the development and implementation of the project. The citizen representatives are individuals who represent the perspectives of patients or citizens and contribute their experiences to the research process.
Data and biological material
Data from interviews and observations with the participants