Team leader
Grete Skøtt Pedersen
Steno Diabetes Center Odense
| Project management | ||
| Project status | Closed | |
| Data collection dates | ||
| Start | 01.01.2020 | |
| End | 31.12.2023 | |
Evaluation database
Short summary
Steno Diabetes Center Odense (SDCO) has initiated several new initiatives aimed at improving the quality of the diabetes treatment for all patients in the Region of Southern Denmark. The overall aim of this project is to examine whether the new SDCO initiatives influence the patients' satisfaction, quality of life as well as psychological aspects of diabetes (diabetes distress). A secondary aim is to establish an evaluation database for data collection, primarily with data from questionnaires co
Rationale
Steno Diabetes Center Odense (SDCO) has initiated several new initiatives aimed at improving the quality of the diabetes treatment for all patients in the Region of Southern Denmark. All new SDCO initiatives are required to have a process and effect evaluation. The overall aim of this project is to examine whether the new SDCO initiatives influence the patients' satisfaction, quality of life as well as psychological aspects of diabetes (diabetes distress). A secondary aim is to establish an evaluation database for data collection, primarily with data from questionnaires completed by the patients.
Description of the cohort
We expect that the cohort will comprise around 3000 active diabetes patients that are in active course of treatment at the department of SDCO, Odense University Hospital (OUH). The patients are identified in the Danish National Patient Registry using the following ICD-10 codes: DE10-14. In the long term, we expect that the cohort will be supplemented with diabetes patients registered at the remaining hospitals in the Southern Region of Denmark.
Data and biological material
The evaluation database will include both survey and register-based data on patients receiving treatment for diabetes in the Region of Southern Denmark. Questionnaires/PRO: The patients are invited to complete different questionnaires on patient satisfaction, continuity of care, user involvement and general wellbeing at baseline and at different follow-ups. The patients are additionally asked about different patient reported outcomes on diabetes distress and diabetes management. We aim to follow the patients prospectively in minimum three phases: 1) at initiation of an initiative (baseline), 2) throughout the implementation, and 3) at end of an initiative.