OPEN Research Support
head

Professor
Bo Abrahamsen
OPEN


Projekt styring
Projekt status    Open
 
Data indsamlingsdatoer
Start 01.06.2020  
Slut 12.10.2021  
 



NATIONAL REGISTER BASED STUDY ON THE EPIDEMIOLOGY OF TUMOUR INDUCED OSTEOMALACIA (TIO) IN DENMARK

Short summary

Tumour Induced Osteomalacia (TIO) is a rare, acquired condition of phosphate wasting due to FGF23 secreting, in most cases very small and non malignant, tumours. Surgical cure is possible in patients provided the location of the tumour can be accurately identified by imaging and that the tumour can be reached and removed surgically, or through radiofrequency ablation.


Rationale

The study is conducted in order to determine the incidence and prevalence of TIO in Denmark over a ten-year period and describe the demographics of this group of patients. This is important because there is a lack of reliable population based estimates on the epidemiology of this disease and the Danish health databases provide a unique opportunity to link relevant databases so that a clear operational definition can be used.


Description of the cohort

Population of Denmark


Data and biological material

National data only


Collaborating researchers and departments

Sapienza University Rome