Professor
Bo Abrahamsen
OPEN
| Projekt styring | ||
| Projekt status | Closed | |
| Data indsamlingsdatoer | ||
| Start | 01.06.2020 | |
| Slut | 12.10.2021 | |
NATIONAL REGISTER BASED STUDY ON THE EPIDEMIOLOGY OF TUMOUR INDUCED OSTEOMALACIA (TIO) IN DENMARK
Short summary
Tumour Induced Osteomalacia (TIO) is a rare, acquired condition of phosphate wasting due to FGF23 secreting, in most cases very small and non malignant, tumours. Surgical cure is possible in patients provided the location of the tumour can be accurately identified by imaging and that the tumour can be reached and removed surgically, or through radiofrequency ablation.
Rationale
The study is conducted in order to determine the incidence and prevalence of TIO in Denmark over a ten-year period and describe the demographics of this group of patients. This is important because there is a lack of reliable population based estimates on the epidemiology of this disease and the Danish health databases provide a unique opportunity to link relevant databases so that a clear operational definition can be used.
Description of the cohort
Population of Denmark
Data and biological material
National data only
Collaborating researchers and departments
Sapienza University Rome