Feasibility study of using "How are you": a PRO questionnaire for Palliative care" (The 'PRO-Pal' study)
Aim: The overall aim of the research project is, through a feasibility study of using a patient-reported outcome (PRO) questionnaire for palliative care, to improve the basic palliative care to people with life threatening diseases. The project is collecting research data following a feasibility test conducted under the auspices of the Danish Health Data Authority, which takes place in hospitals, municipalities and at REHPA, the National Knowledge Centre for Rehabilitation and Palliative Care.
The Danish Health Data Authority has developed questionnaires for collecting patient-reported outcomes (PRO) in e.g. rehabilitation and diabetes care, and has through the past years developed a PRO questionnaire for palliative care, aimed at the basic palliative level - that is, organizations that do not work with palliative care as a main task.
The PRO questionnaire for palliative care was developed in a national setting by a clinical coordination group under the auspices of the Danish Health Data Authority. The questionnaire was developed for use among people with a life threatening cancer-, heart-, lung- or kidney disease.
The overall aim of the present research project is, through a feasibility study of using the PRO-questionnaire for palliative care, to improve the basic palliative care to people with life threatening diseases. The project is collecting research data following a feasibility test conducted under the auspices of the Danish Health Data Authority, which takes place in hospitals, municipalities and at REHPA, the National Knowledge Centre for Rehabilitation and Palliative Care.
Description of the cohort
Patients with advanced life-threatening diseases from: cardiology, pulmonary medicine, oncological, nephrological, surgical and medical hospital departments and municipalities.
Data and biological material
Data will be both quantitative and qualitative. PRO-data and evaluation data will be collected from approx. 50 patients/citizens pr. hospital/municipality; approx. two individual patient interviews pr. hospital/municipality; and evaluation questionnaires and workshops (group interviews) with relevant professionals from each site.
Collaborating researchers and departments
the Department of Pulmonary Medicine and the Department of Cardiology, Bispebjerg and Frederiksberg Hospital
- • Marie Albrectsen Paine firstname.lastname@example.org Anette Agerholm email@example.com ,Søsserr Lone Smilla Grimshaw-Aagaard firstname.lastname@example.org
Department of Pulmonary Medicine and Infectious Diseases, Nordsjællands Hospital
- Camilla Charlotte Lykke email@example.com, Maria Omel Jellington Maria.Omel.Jellington@regionh.dk
Department of Nephrology, Herlev and Hvidovre Hospital
- Pamela Nørgaard firstname.lastname@example.org Elizabeth Krarup email@example.com, Charlotte Gro Kinnunen Charlotte.Gro.Kinnunen@regionh.dk
Surgical and possibly Medical department, Holbæk Hospital
- Heidi Maria Bergenholtz firstname.lastname@example.org
Lung diseases department, Lillebælt Hospital
- Anders Løkke Anders.Lokke@rsyd.dk , Edina Nikolett Barna Edina.Nikolett.Barna@rsyd.dk
- Mikael Skytte email@example.com
Palliative Research Unit, Bispebjerg and Frederiksberg Hospital
- Mogens Grønvold Mogens.Groenvold@regionh.dk, Maiken Bang Hansen Maiken.Bang.Hansen@regionh.dk
REHPA, The Danish Knowledge Centre for Rehabilitation and Palliative Care
- Mette Raunkiær Mette.Raunkiaer@rsyd.dk, Cecilie Lindström Egholm Cecilie.Lindstrom.Egholm@rsyd.dk