Associate Professor, Research Nurse
Anne Dichmann Sorknæs
Department of Medicine, Odense University Hospital, Svendborg
| Projekt styring | ||
| Projekt status | Open | |
| Data indsamlingsdatoer | ||
| Start | 01.09.2019 | |
| Slut | 01.07.2021 | |
Technology Support and Cross-Sector Data Sharing for Long-Term Non-Invasive Ventilation (LT-NIV) for patients with Severe Chronic Obstructive Pulmonary Disease (COPD).
Short summary
This projects aim is, to develop a various forms of technology-supported knowledge and data exchange across disciplines and sectors. To strengthening the patients, relatives and healthcare professionals experience with LT-NIV. To strengthening the quality and safety in LT-NIV in the patients own homes. Develop the skills of relatives and front staff so that they can support and guide patients in the correct use of LT-NIV treatment and handling of the equipment.
Rationale
Background NIV (Non Invasive Ventilation) is a system that supports breathing. In the Region of Southern Denmark, approx. 600 patients with Non Invasive Ventilation (NIV) are treated at the hospital (2). Now it has become possible to offer this treatment to patients in their homes. Studies have documented that LT-NIV for patients with COPD can reduce mortality by up to 80% (3) and reduce the number of readmissions, as well as improve quality of life (4-5). Furthermore, the frequency of exacerbations is reduced and the patients' rehabilitation potential is improved (3-5). Relatives and frontline staff from home care often support the patient in the use of the treatment, so it is assumed that these two groups will need support and guidance in the treatment and handling of the equipment from staff who know this special treatment in order to provide greater security, quality and patient safety. Patients who meet the criteria for home NIV treatment have often for a long period received home oxygen treatment, but now also have to handle apparatus, equipment and maintenance of another technological equipment (NIV). The pulmonary outpatient clinic have experienced that it can be a challenge for some of the patients in NIV treatment, their relatives and home care, to handling the treatment and the equipment and there may therefore be a need for support and guidance in the use of the new equipment. Home NIV treatment is a new treatment that is unknown in home care, and they may have difficulty supporting and guiding patients in the use of the treatment and equipment. The purpose This projects aim is, to develop a various forms of technology-supported knowledge and data exchange across disciplines and sectors. To strengthening the patients, relatives and healthcare professionals experience with LT-NIV. To strengthening the quality and safety in LT-NIV treatment in the patients', own homes. Develop the skills of relatives and front staff so that they can support and guide patients in the correct use of LT-NIV treatment and handling of the equipment. The project supports and is supported by Family-Focused Nursing, which will be able to strengthen the involvement and support of relatives. The project can also support the planned national rollout of telemedicine for patients with COPD, which will be implemented in 2019-20. The target group for the national rollout is precisely patients with severe COPD who need support. Plan for the project The project will take place in the period 2019-2021. Patients, relatives and home care are given access to a system (an app "My hospital"), which contains information and teaching material regarding home-NIV treatment. Patients can (with help) submit measurements, send messages / ask questions, and have video contact with a nurse at The pulmonary outpatient clinic. Once the app is tested, interviews will be conducted with some of the patients, relatives and home care. Side effects, risks, complications and disadvantages Home-NIV is a well-known and proven treatment, and there are no risks or side effects when using the app with information and teaching material, as well as monitoring and video contact for nurses at the hospital and home care.
Description of the cohort
Adults with severe COPD and Long-Term Non-Invasive-Ventilation demanding treatment. Both men and women. Relatives and Healthcare professionals who have contact with the patients.
Data and biological material
Age, male/female, Lung function, saturation, pO2 and pCO2, MRC, Admissions, Exacerbations, Relatives, Healfcare, AirView data, technical data on the use of telecommunications equipment, experiences of safety og quality